Posted in Archive, September 2013

Craft Fundraiser for Dystonia.

Today I attended a craft fair that was fundraising for a school and for the The Dystonia Society. I had been rather looking forward to it as it was a great opportunity to raise awareness and to restock my craft supplies РI love to crochet. The fundraiser was busy all day which was fantastic and over £200 was raised for The Dystonia Society.

About halfway through the day I got the opportunity to give a speech on what Dystonia was and what life with it was like. I was slightly nervous that I would be useless and just woffle, but have been reassured the speech was ok ūüôā . I drew on my experiences of living with generalised Dystonia, and whilst I tried to only speak in a positive way, I also spoke in a realistic manner, and sadly Dystonia is not a pink fluffy ball of positivity. I found out afterwards that my speech had reduced some people to tears, which I felt bad about, but it had also inspired several people to do their own fundraising for The Dystonia Society which is incredible!

My church has chosen there september mission to be Dystonia. So they shall also be raising awareness this month which is incredible! I feel very lucky that they have taken on this cause. It was a fantastic day today, and I am so thankful that I was well enough to go down and meet such a lovely group of people.

 

Posted in Archive, December

A girl can dream

My mother posted the photo below on my Facebook wall the other day. The words I find ring so true to me! I dream of being a midwife, and because I have experienced what the life would be like, I dream of it even more. So I will keep on fighting my dystonia, I shall push my body further each day, until my brain understands what it is meant to do! Its going to be hard, and I know that I am going to have good days and bad days, but next September I will return to uni and recommence my midwifery training! It may be hard to get there but that wont stop me!

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